Web Survey Bibliography
Background: Rapid Ethical Assessment (REA) is a form of rapid ethnographic assessment conducted at the beginning of research project to guide the consent process with the objective of reconciling universal ethical guidance with specific research contexts. The current study is conducted to assess the perceived relevance of introducing REA as a mainstream tool in Ethiopia.
Methods: Mixed methods research using a sequential explanatory approach was conducted from July to September 2012, including 241 cross-sectional, self-administered and 19 qualitative, in-depth interviews among health researchers and regulators including ethics committee members in Ethiopian health research institutions and universities.
Results: In their evaluation of the consent process, only 40.2% thought that the consent process and information given were adequately understood by study participants; 84.6% claimed they were not satisfied with the current consent process and 85.5% thought the best interests of study participants were not adequately considered. Commonly mentioned consent-related problems included lack of clarity (48.1%), inadequate information (34%), language barriers (28.2%), cultural differences (27.4%), undue expectations (26.6%) and power imbalances (20.7%). About 95.4% believed that consent should be contextualized to the study setting and 39.4% thought REA would be an appropriate approach to improve the perceived problems. Qualitative findings helped to further explore the gaps identified in the quantitative findings and to map-out concerns related to the current research consent process in Ethiopia. Suggestions included, conducting REA during the pre-test (pilot) phase of studies when applicable. The need for clear guidance for researchers on issues such as when and how to apply the REA tools was stressed.
Conclusion: The study findings clearly indicated that there are perceived to be correctable gaps in the consent process of medical research in Ethiopia. REA is considered relevant by researchers and stakeholders to address these gaps. Exploring further the feasibility and applicability of REA is recommended.
Keywords: Rapid ethical assessment; Ethiopia; Research ethics; Consent
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Web survey bibliography (345)
- Mind the Mode: Differences in Paper vs. Web-Based Survey Modes Among Women With Cancer; 2017; Hagan, T. L.; Belcher, S. M.; Donovan, H. S.
- Web-Based Survey Methodology; 2017; Wright, K. B.
- Handbook of Research Methods in Health Social Sciences; 2017; Liamputtong, P.
- Lessons from recruitment to an internet based survey for Degenerative Cervical Myelopathy: merits of...; 2017; Davies, B.; Kotter, M. R.
- Achieving Strong Privacy in Online Survey; 2017; Zhou, Yo.; Zhou, Yi.; Chen, S.; Wu, S. S.
- Measuring Subjective Health and Life Satisfaction with U.S. Hispanics; 2017; Lee, S.; Davis, R.
- The Effect of Respondent Commitment on Response Quality in Two Online Surveys; 2017; Cibelli Hibben, K.
- In search of best practices; 2017; Kappelhof, J. W. S.; Steijn, S.
- Rates, Delays, and Completeness of General Practitioners’ Responses to a Postal Versus Web-Based...; 2017; Sebo, P.; Maisonneuve, H.; Cerutti, B.; Pascal Fournier, J.; Haller, D. M.
- Web Health Monitoring Survey: A New Approach to Enhance the Effectiveness of Telemedicine Systems; 2017; Romano, M. F.; Sardella, M. V.; Alboni, F.
- Gathering Opinions on Depression Information Needs and Preferences: Samples and Opinions in Clinic Versus...; 2017; Bernstein, M. T.; Walker, J. R.; Sexton, K. A.; Katz, A.; Beatie, B. E.
- Oversampling as a methodological strategy for the study of self-reported health among lesbian, gay and...; 2017; Anderssen, N.; Malterud, K.
- Demographic Question Placement: Effect on Item Response Rates and Means of a Veterans Health Administration...; 2017; Teclaw, R.; Price, M.; Osatuke, K.
- Comparison of response patterns in different survey designs: a longitudinal panel with mixed-mode and...; 2017; Ruebsamen, N.; Akmatov, M. K.; Castell, S.; Karch, A.; Mikolajczyk, R. T.
- Survey mode influence on patient-reported outcome scores in orthopaedic surgery: telephone results may...; 2017; Hammarstedt, J. E.; Redmond, J. M.; Gupta, As.; Dunne, K. F.; Vemula, S. P.; Domb, B. G.
- Comparing Twitter and Online Panels for Survey Recruitment of E-Cigarette Users and Smokers; 2016; Guillory, J.; Kim, A.; Murphy, J.; Bradfield, B.; Nonnemaker, J.; Hsieh, Y. P.
- Web based health surveys: Using a Two Step Heckman model to examine their potential for population health...; 2016; Morrissey, K.; Kinderman, P.; Pontin, E.; Tai, S.; Schwannauer, M.
- “Better do not touch” and other superstitions concerning melanoma: the cross-sectional web...; 2016; Gajda, M.; Kamińska-Winciorek, G.; Wydmański, J.; Tukiendorf, A.
- Methods for Evaluating Respondent Attrition in Web-Based Surveys; 2016; Hochheimer, C. J.; Sabo, R. T.; Krist, A. H.; Day, T.; Cyrus, J.; Woolf, S. H.
- Question order sensitivity of subjective well-being measures: focus on life satisfaction, self-rated...; 2016; Lee, S.; McClain, C.; Webster, N.; Han, S.
- Using Visual Analogue Scales in eHealth: Non-Response Effects in a Lifestyle Intervention; 2016; Kuhlmann, T.; Reips, U.-D.; Wienert, J.; Lippke, S.
- A Case Study on the Use of Propensity Score Adjustments with Web Survey Data; 2016; Parsons, V.
- Using official surveys to reduce bias of estimates from nonrandom samples collected by web surveys; 2016; Beresovsky, V.; Dorfman, A.; Rumcheva, P.
- A Feasibility Study of Recruiting and Maintaining a Web Panel of People with Disabilities; 2016; Chandler, J.
- Exploration of Methods for Blending Unconventional Samples with Traditional Probability Samples; 2016; Gellar, J.; Zhou, H.; D.; Sinclair, M. D.
- Evaluation of mode equivalence of the MSKCC Bowel Function Instrument, LASA Quality of Life, and Subjective...; 2016; Bennett, A. V.; Keenoy, K.; Shouery, M.; Basch, E.; Temple, L. K.
- Population Survey Features and Response Rates: A Randomized Experiment; 2016; Guo, Y.; Kopec, J.; Cibere, J.; Li, L. C.; Goldsmith, C. H.
- Web Health Monitoring Survey: A New Approach to Enhance the Effectiveness of Telemedicine Systems ; 2016; Romano, M. F.; Sardella, M. V.; Alboni, F.
- Question order sensitivity of subjective well-being measures: focus on life satisfaction, self-rated...; 2016; Lee, S.; McClain, C.; Webster, N.; Han, S.
- Facebook, Twitter, & Qr codes: An exploratory trial examining the feasibility of social media mechanisms...; 2016; Gu, L. L.; Skierkowski, D.; Florin, P.; Friend, K.; Ye, Y.
- Helping respondents provide good answers in Web surveys; 2016; Couper, M. P.; Zhang, C.
- The Effects of a Delayed Incentive on Response Rates, Response Mode, Data Quality, and Sample Bias in...; 2016; McGonagle, K., Freedman, V. A.
- Feature phones no barrier to conducting an effective conjoint study ; 2016; de Rooij, R.; Dossin, R.
- Patient preference: a comparison of electronic patient-completed questionnaires with paper among cancer...; 2016; Martin, P.; Brown, M.C.; Espin‐Garcia, O.; Cuffe, S.; Pringle, D.; Mahler, M.; Villeneuve, J.;...
- Detecting Insufficient Effort Responding with an Infrequency Scale: Evaluating Validity and Participant...; 2016; Huang, J. L.; Bowling, N. A.; Liu, Me.; Li, Yu.
- On-line life history calendar and sensitive topics: A pilot study; 2016; Morselli, D.; Berchtold, A.; Granell, J.-C. S.; Berchtold, And.
- An experiment comparing grids and item-by-item formats in web surveys completed through PCs and smartphones...; 2016; Revilla, M.; Toninelli, D.; Ochoa, C.
- Assessing the Effects of Participant Preference and Demographics in the Usage of Web-based Survey Questionnaires...; 2016; Mlikotic, R.; Parker, B.; Rajapakshe, R.
- Improving Inpatient Surveys: Web-Based Computer Adaptive Testing Accessed via Mobile Phone QR Codes; 2016; Chien, T. S.; Lin, W.S.
- Comparing online and telephone survey results in the context of a skin cancer prevention campaign evaluation...; 2016; Hollier, L.P.; Pettigrew, S.; Slevin, T.; Strickland, M.; Minto, C.
- Collecting Data from mHealth Users via SMS Surveys: A Case Study in Kenya; 2016; Johnson, D.
- Effect of a Post-paid Incentive on Response to a Web-based Survey; 2016; Brown, J. A.; Serrato, C. A.; Hugh, M.; Kanter, M. H.; A.; Spritzer, K. L.; Hays, R. D.
- Reducing Underreports of Behaviors in Retrospective Surveys: The Effects of Three Different Strategies...; 2016; Lugtig, P. J.; Glasner, T.; Boeve, A.
- Quantifying Under- and Overreporting in Surveys Through a Dual-Questioning-Technique Design. ; 2016; de Jong , M.; Fox, J.-P.; Steenkamp, J. - B. E. M.
- Take the money and run? Redemption of a gift card incentive in a clinician survey. ; 2016; Chen, J. S.; Sprague, B. L.; Klabunde, C. N.; Tosteson, A. N. A.; Bitton, A.; Onega, T.; MacLean, C....
- Creation and Usability Testing of a Web-Based Pre-Scanning Radiology Patient Safety and History Questionnaire...; 2016; Robinson, T. J.; DuVall, S.; Wiggins III, R
- A multi-group analysis of online survey respondent data quality: Comparing a regular USA consumer panel...; 2016; Golden, L.; Albaum, G.; Roster, C. A.; Smith, S. M.
- The effect of email invitation elements on response rate in a web survey within an online community; 2016; Petrovcic, A.; Petric, G.; Lozar Manfreda, K.
- Quota Controls in Survey Research.; 2016; Gittelman, S. H.; Thomas, R. K.; Lavrakas, P. J.; Lange, V.
- Internet-administered Health-related Quality of Life Questionnaires Compared With Pen and Paper in an...; 2016; Nitikman, M.; Mulpuri, K.; Reilly, C. W.